💨 Abstract

In October 2024, Andrew, aged 51, was diagnosed with motor neurone disease (MND), a condition that causes muscle weakness and gradual paralysis. Despite initial denial and hope, Andrew passed away 13 months later. The author, Andrew's wife, shares their struggle, the rapid progression of the disease, and the emotional toll on their family. They highlight the need for better treatments and awareness, mentioning a potential RNA therapy that came too late for Andrew.

Courtesy: Milica Davies